Family Struggles To Pay Treatment Costs Of Children Diagnosed With Rare Skin Disorder

It’s so sad to see such young children dealing with so much pain.

Ramli Ismail @ramlysmail_ recently took to his Twitter account on 10 June to share the story of a young girl, known as Ainin from Jerantut, Pahang who is suffering from a terrible skin disorder.

She was born with Epidermolysis Bullosa (EB), a skin condition that requires special care and suitable dressing every day. This rare skin disorder causes fragile and blistering skin, a condition Ainin has been suffering from since birth.

Whenever there’s friction on her skin, Ainin will suffer great pain since the two skin layers rub against each other, causing blisters and painful sores.

EB is mostly an inherited disease and sadly, Ainin isn’t the only one in her family who is suffering from this condition. According to MarhaenMY, Ainin’s older sibling passed away from this disorder in 2013 while her younger sibling is currently suffering from it as well.

The treatment costs for both Ainin and her sister comes up to approximately RM2,500 to RM3,000 a month but due to lack of financial aid, the family is currently having a hard time supporting these two children. Ainin’s father works as a FAMA lorry driver while her mother is a full-time housewife and their monthly income is only sufficient for their daily essentials.

Donations are welcomed to support the cost of treatment for these two siblings on this crowdfunding link by @MarhaenMy.

However, the crowdfunding is currently closed as they have met a sufficient amount of donations but looking at their poor conditions, Ramli suggested that the page be opened up again soon to provide a better living for Ainin and her sister. You can contact and DM @ramlysmail_ directly on his Twitter account for more details and information about Ainin and her family.

WORLD OF BUZZ has since reached out to Ainin’s mother to request if further donations or assistance are needed.

Stay tuned for more updates. 

 

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